Patient Engagement

Patient and public involvement (PPI)

Patient and public involvement (PPI) in clinical research means research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’, or ‘for’ them.

By engaging patients, researchers hope to ensure their research projects are person-friendly and consider the needs of people affected directly or indirectly by the disease or condition. The aim is to design research with people for patients.

DCR Standing PPI Panel

To support clinical researchers at the University of Bern and Inselspital, DCR formed a standing panel in 2023. We refer to members on the standing panel as PPI contributors. The standing DCR panel consists of people interested in sharing their opinions and perspectives about clinical studies.

PPI contributors support researchers by offering their perspectives and experiences. By doing so, they influence clinical research project design and conduct. Including PPI contributors in research projects is called “patient engagement.”

PPI Contributors

Membership on the standing DCR PPI panel is open to all people who speak and read German. PPI contributors are patients, carers, and members of the public. PPI contributors do not need specific expertise.

PPI contributors do not participate in clinical research studies. Instead, they influence research studies by advising researchers during planning, conducting, and reporting the study.

PPI contributors might have experiences with diseases or conditions directly or personally. Or PPI contributors might be interested members of the public without direct or personal experience with diseases and conditions.

Diversity makes it possible to represent different perspectives, knowledge, and experiences. DCR values diversity and equality, including age, gender, cultural and socio-economic backgrounds.