Patient Engagement

Patient and public involvement (PPI)

Patient and public involvement (PPI) in clinical research can be defined as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’, or ‘for’ them. Patients and members of the public become actively involved in shaping the goals, design, and evaluation of research projects by sharing their general views on a clinical research project or by sharing their specific experiences with a disease.

Partnering with patients is a key strategy to better understand and support the patient’s needs in clinical research. Patients can provide valuable insights into the opportunities for clinical trials. One way to involve members of the public is by creating a patient advisory panel – a formal group of patients brought together to provide a patient perspective on relevant issues about clinical trials including recruitment, patient information, new trial protocols, and ethical issues. The establishment of a patient advisory panel is a prioritized project for 2023.